Nearly 29,000 children and young people in Australia are living with conditions that will limit their life expectancy. Many of their families will be introduced to paediatric palliative care by a treating team, and most will immediately associate the term with end-of-life.
That association creates a barrier. Families who could benefit from additional support may avoid it entirely because the language itself feels threatening. Palliative Care Australia (PCA) had built a dedicated paediatric palliative care website with resources grounded in the lived experiences of parents, siblings, and health professionals. But the gap between having good resources and reaching overwhelmed families remained.
PCA needed a way to reframe what paediatric palliative care means before families ever reached the website. Something short enough to hold attention during a crisis, warm enough to feel safe, and clear enough to prompt a next step.